My daughter has a rare blood disorder called idiopathic thrombocytopedia pupura (immune) which causes her immune system to destroy her platelets so she just bleeds, randomly. Her eye just haemorrhaged a few weeks ago and an entire half was filled with blood, today, five hour nose bleed.

She can feel when they're coming and she sits down with her bloody nose kit, tissues, a trash bag, a puke bucket for when she swallows too much blood and vomits, gauze, cold packs. My daughter is four. I have been able to convince myself for almost three years that yes, she is sick, but not THAT sick.

Last week we spent four days at the hospital for severe anemia and no detectable platelets. She is THAT sick. I get it now. She is getting a wish, and she is getting worse because she is that sick. We have tried every medication available for treatment of this disease. Nothing helps. Nothing fixes it. My heart is broken.